Alex and Maddy

Alex and Maddy

Thursday, December 10, 2009

Where did a week go???? I was sure I had just updated!

As most of you know, I am 100% extrovert. I am a people person and love to stay busy. So much so that Alex's first trip to the zoo was before he was 2 months old and he flew on an airplane the first time as a 5 week old. I have had to come to terms with not being able to be out as much since we have known the extent of Alex's illness. So it is surprising I would feel this way, BUT after the year we had last year, I am the loving the quiet, boring monotony of life these days. Because of flu season we are pretty much stranded at home, but we are SO happy to be home and not in the hospital!

Al​ex has started his hibernation! We have noticed a very clear pattern over the last few years. When it gets cold, Alex's energy levels definitely struggle and he sleeps even more then usual. So right now with the frigid temperature​s in Texas, Alex is sleeping his life away. He is sleeping in till about 8 every morning. Is back asllep by 1 and I am waking him up at 5:30 every evening to massive protests and back to sleep at 9 for the night. Don't we all wish we could follow his schedule! It does make it easier for me to do all the extra stuff to prepare for Christmas!

O​n the medical front we got good news this week! We finally received the report from Alex's sleep study. It looks pretty good. See above paragraph...​we always knew the kid could sleep! We also did new evaluations for both OT and PT. There were really know surprises. The only bummer was that Alex's hand strength is even worse then I thought.

We ask for continued prayers for Buggy's health as we approach Christmas, as well as for Bruce's job search and our insurance concerns.

Happy Holidays,
Al​i

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