Alex and Maddy

Alex and Maddy

Wednesday, December 2, 2009

We had snow today!!!! This is the second time we have had snow since Alex was born. He was so excited! We were outside before 9:00 this morning. I had a good chuckle before we went out. As we were getting ready, Alex said, " Mommy you know you have to make me hot cocoa to smell when we come in". Could there be anyone more upbeat in the world then our Buggy? He always finds a way to be so "normal" in spite of his circumstanc​es. We didn't last too long as Bug doesn't regulate his temperature very well, but we had fun while we were out!

Monday was lab day. Alex's labs were not as great as last time, but they were ok. All his liver numbers were elevated again and his clotting numbers were up, but overall no surprises. Today we gave our first dose of Vitamin K at home. It is a shot. So yet one more time I have to stick and torture my baby. He is such a trooper. He was very excited after we gave it to discover that Vitamin K does not burn like his procrit. So in Alex's words...."T​hat didn't hurt at all!"

We are getting back in the swing of school. I am constantly amazed by Alex's thirst for knowledge and his unbelievabl​e ability to soak up so much. He really enjoys learning and loves to be praised for his hard work and accomplishm​ents. He continues to love, reading and math and LOVES his computer. He can navigate his computer better then some adults I know.

As for our insurance situation... Bruce's old employer has graciously written a letter trying to clarify the policy and help us get medicaid to continue to cover our premiums. We are so thankful for their love and support. Please continue to pray that this situation resolves itself.

We also ask for continued prayers for bruce to find a good job quickly! After a year of unemploymen​t we are in need of steady income.

We pray that during this holiday season each of you knows the blessing and treasure you have been in our lives.
Ali

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