I have a ton to update...
We have stopped letting Alex eat lollipops and my sweet boy has returned. The monster has left the building. I can't remember if I posted about this, but Liz his therapist had arranged for Alex to get a tricycle that exercises his arms and legs. We got to bring that home today so that was really exciting. When we get back from Houston I will take a picture. Otherwise, Alex seems to be doing well. He loves to get out and see his friends.
Next week will be crazy!!!! I just heard from the clinical coordinator in Houston. Alex is scheduled for testing /appts then he has ever had. While in Houston we will see the neurologist, a surgeon, an endocrinologist, an immunologist, and an opthamologist. They will run a ton of bloodwork, do an MRI/MRS of his brain, and a muscle biopsy. Poor little guy! Talk about being put through the ringer.
It is so nice to have one Dr. interested in Alex and coordinating all of his care. I am really anticipating all we can learn.
We are also excited to see old friends and meet new ones.
Please pray for our safe travel and for Alex to hold up during all the testing.