Alex and Maddy

Alex and Maddy

Saturday, November 28, 2020

Not much to report

 I haven’t updated, because I am really a little unsure of what to say. Overall, Alex has been feeling pretty good. he has not had a fever since Wednesday. He looks good. Nothing is hurting. His blood pressures and heart rates have been a little lower than we would like. But despite how good he looks and feels we continue to have positive blood cultures each day. And so we sit and wait. We are also having a hard time with antibiotic levels and finding the best dose to treat. The thought at this point is that the infection is in his port and not his bloodstream. So along with the IV antibiotics we are also doing antibiotic “locks” into his port where we let the medication sit for several hours and then draw it back out. This is a little tricky because Alex does not do well without dextrose for very long. 

We ask for prayers that we are able to clear this infection. If we are not able to do that we will need to have surgery to remove this port and then a second surgery several weeks later to place a new one. 

In the meantime, Alex and I will continue to use this time together to watch shows, to play games and to enjoy our time together.

Ali

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