As most of you know, we spend a lot of time at Church and with our church family (pre-covid). Our faith is so important and keeps us filled with hope. Alex's faith was apparent from a young age, but he always came back to one stumbling block... He would always ask me if God didn't make mistakes, why was he the way he was? meaning why did he have mitochondrial disease, why did he have to spend so much time in the hospital, why couldn't he eat, why did he feel bad most of the time. My answer through the years has always been the same. God gave you this life to share your story, to inspire other people and to shine a light on him.
2011 was the first year we shared a little of our story for Make A Wish. But in 2014, we were asked to share our story for Cook Children's and we met Karol ( Cook Children's CMN Hospital Specialist) him shortly afterwards. That meeting made such a difference for Alex. It gave us purpose. It gave his life meaning. For the past six years, Alex and I have stood in front of groups large and small and shared our story and tried to give back. Alex loves all of these opportunities, but as an avid gamer, Extra Life holds a special place in his heart. It combines the two things that mean the most to him (outside of friends and family). This day, this event has brought him smiles and something to focus on during some of the toughest days. While we all wish this year could be like all of the others where he gets to go spend his day with other gamers. This day still fills his tank and his mission stays the same. To make sure that when other kids are in the hospital the services are there to make their stays a little bit easier. We are so grateful for every one of you who has so graciously given and shared. Alex is committed to trying to reach his goal. I will always stand behind him as he strives to give his life and his struggle meaning.
Thank you for loving us well!
Ali
A little about the beginning of Extra Life:
A video Alex made for Cook Children's:
Alex's Fundraiser Link:
https://www.extra-life.org/participant/401726
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| My Gamers at it this morning! |
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