Not a Good Summer

Should I start with the good news or the bad? Well let me try again, I don't really have good news, but Maddy did have some fun this week. 

I kind of feel like the hits keep coming! This morning Alex's nurse of 4 years who helps me two days a week quit. Not having her adds to what I need to do, but it is so much more than that. She is Alex's "buddy" who he laughs with. She is someone to help Maddy when I can't do one more thing. She is a "family member"and one of the few people who gets what our life is like. She is the only other person who can do some of Alex's care. Her leaving means I cannot leave the house for any extended period of time (more than a few hours). As I told someone today this was the straw that broke the camel's back today. All of the tears I have managed to keep at bay spilled over today. I am simply one person and our family has endured so many hardships. Because of Coronavirus, I am unable to even entertain the idea of finding someone new. We cannot have someone in our house who is not (and anyone they live with) strictly quarantining. That is a lot to ask of someone and trust them to abide by. And so I will continue to put one foot in front of the other. I will pray and I will trust that God is holding us tightly. That he will provide financially while I take time off work, that he will protect us health wise and that he will allow me places of rest. 

For those that have been waiting and praying with us....we still do not have Bruce's pathology results despite calling several times. Bruce has his follow-up on Wednesday so hopefully we will have news then!

We did allow Maddy a small slice of normalcy this week. Anyone who knows us knows that Maddy's passion is horses. The week before COVID became our life she attended three days of camp during spring break. After careful consideration Bruce and I decided to allow her to go back to camp this week. It is one instructor and three other girls so it is pretty small and about as safe as you can find during this day and time. Maddy loved every minute...the feeding, the grooming, the mucking stalls and especially the riding. The fact that we also got to love on our friends 5 week puppies at the end of each day wasn't too bad either! 

Maddy and Muffin

You can never get too much puppy love!

Day 2 of Camp

When the big girls tell you not to let Reed escape!

Mad and "Hopper"

Alex needed a turn!

Maddy getting love from Sarah on her last day.

Feeding Muffin

Thank you for continuing to pray for and love our family as we navigate this rough season.

Ali