Alex and Maddy

Saturday, February 16, 2019

Exciting News and Lots of Pictures

This has been a fun week for the kids highlighted by some really exciting news. Unfortunately, I have been sick and felt awful most of the week. I finally got some antibiotics on Friday and am on the mend from a nasty sinus infection.

Monday I had Maddy's parent teacher conference at school and received an amazing report. Maddy is doing amazingly well academically and socially. She is friends with all of her classmates and is a good listener for her teachers. We continue to watch Maddy grow in so many ways and Building Blocks has been the perfect environment for her to gain confidence and skills. She is surrounded by love and kindness from all of the teachers and  students. I am excited that we have decided to let Maddy continue one more year in Building Blocks Private Kindergarten. They have an incredible teacher who challenges these students while fostering a love of learning.

Tuesday was a quiet day, but Mad made it back to ballet after missing a few weeks. She loves ballet and was happy to be back.



Ballerina's even play games in their tutu!

Thursday we had a jammed pack day. We started the morning at the hospital to sign consents and do some testing for Alex to start a medication that is not commercially available. It is a medication that the FDA is allowing some physicians to use with a handful of patients who have no other treatment options. The hope is that it will give Alex some GI function in hopes of getting more feeds going and lowering his need for IV nutrition/fluids which he is currently on 24 hours a day. It was a long morning with a lot of information. We should get the medication sometime this week to start. Then I rushed to Mad's school to volunteer during her Valentine's Day party. After school we went out for ice cream with one of Alex's best friends.

Maddy and her bff, Brooke!

Maddy and Mrs. Zorich being photobombed by Mrs. Donaldson!


Maddy and Mrs. Mitchell

Maddy and Ellie

Alex, Maddy and Ellie

Today our family fun day was to SeaLife Aquarium thanks to HopeKids. The kids had a fun time!








OKAY....Are you ready for the BIG NEWS??????

ZOEY IS COMING HOME! The plan is for Alex and I to travel to the trainer from March 15-18th to work with her and then bring Zoey home. We are so excited to get our sweet girl here and have her start working for Alex in the way she was meant to. We will continue to leave our fundraiser open until we pick Zoey up. If you feel called please, pray and share our link as we try to reach our goal over this last month. Zoey's Fundraiser

Thank you for continuing to walk this crazy journey with us!
Ali

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