This will be quick as I am limited on time.
Alex is being admitted this afternoon to the Hospital in Fort Worth. This is a planned admission. For the past six years Alex has been hooked to his feeds 24 hours a day. He carries his backpack everywhere. Once in a while we give him a short break when he is doing something physical for fear of his tube being pulled out. We have always had trouble with his blood sugar dropping and him not feeling well during these times. Endocrinology is admitting Alex to do a modified fasting challenge to see if there is anything we can do to allow Alex to have a 3-4 hour break from feeds during the day. We will start the challenge first thing tomorrow and should be discharged tomorrow evening.
Then we will have a quick turn around as we leave first thing Wednesday morning to Houston. However this time the patient isn't Alex...it's me! When Alex had the hole in his heart closed in June 2012, I was told that I should have my heart checked based on some symptoms I have and a strong family correlation for these types of defects. fast forward a year and I still had not followed up, but my Mom did and she had the same hole. Last month Mom had her hole patched. I had an echocardiogram done in January that showed that I also have the hole. We are going to Houston so I can have a heart cath and have the hole patched if it is big enough to warrant closure. I have been told that there is a 90% chance it will need to be closed based on family history. Both my Mom's and Alex's were pretty significant. I am not as worried about the procedure as I am about my little girl! We have tried and tried, but the spoiled little thing will not take a bottle! We have been assured that she can stay in the hospital with me. (I will be admitted for one night). Hopefully, that is the truth.
Please pray for Alex to handle the fasting challenge okay. Please pray for my procedure and most specifically that the baby can stay at the hospital which will greatly decrease my stress level!
I will do my best to update throughout the week.