I know, I know, I have been totally slack about updating! As always, no news is good news! Alex is doing great. We are finally seeing some of the spark in him that we have always seen when he is on TPN. It took so much longer this time. I was speaking to a doctor we have seen for a while and she really felt that him taking so long to come around really speaks to how big of a hole we had dug nutritionally. She commented that this is the best she has ever seen him look!
Staying on the medical front...Alex and I head to Houston this week for a number of follow up appointments. It should be a pretty laid back trip as I don't have a whole lot of concerns. My one main concern is that Alex is having a lot of respiratory issues. He is feeling short of breath multiple times a day. All of the doctors feel like this is most likely related to his GI distension/bloating, but I still need someone to address how we can make him more comfortable.
Alex is bouncing off the walls with excitement because Mimi and PopPop are arriving tomorrow for a vacation! We can't wait for them to get here. They will be joining us on our trip to Houston and then staying for a few more days when we get back!
Alex and I trialled a Homeschool Co-op this morning that we will be joining in the fall. Alex had an absolute blast. We had only planned on staying for the first 2 hours, but wound up staying the last hour as well because Alex didn't want to leave. He was chattering about lots of new friends on the way home. He can't wait until the fall when we can join them on a regular basis. I am always amazed by Alex's confidence and grace as he handles new situations and questions. He just loves people and thrives around kids of all ages. It was nice to be in a group of nice, well behaved Christian kids with the same values we have. Alex felt right at home. On the way home, he told me,"I think homeschool kids have are more imaginative, just like me". So true!
Alex continues to love his Mia. She really is such a good match. She loves to play with him, but also is really sweet and cuddly. She is so smart. She is definitely a water dog. Twice now she has taken a flying leap into the bath tub to join me or Alex! I think swimming is in her future.
Bruce continues to love his job. Life around our house is so much better with him so happy at work. We are feeling very blessed right now.
I will update next week from Houston.
Ali
I wish I could see you guys while you are here. Let me know if you have a free moment. I will drive to you! I could sure use an Ali hug and Alex smile!
ReplyDeleteLove you all!
Sarah