A picture of Alex's poor, bloated belly!
The other problem is that Alex is not keeping his saturations up when he is sleeping. We are pretty sure that this is due to either the anemia or the distention (which can put pressure on the lungs). We are very hopeful that this will resolve when the underlying cause is addressed. Today alex has not fell as well as he has the rest of the week. He just looks puny and tired. I am hopeful we get a better feel for what is wrong when we see labs tomorrow.
One nice surprise this week was an impromptu photo shoot with one of the renal doctors. Sje is a doctor we don't see, but who has an office on our unit in the hospital. Sheis an avid photographer and had asked me in January if I would allow her to photograph Alex. She had her camera yesterday and came by when Alex woke up from nap and photographed him in his hideout. I can't wait to see if she got some good shots. Alex had a really good time with her andasked her to take pictures of him again! Now that's my boy!
Once again, Thank you for all the prayers and well wishes.