Alex and Maddy

Alex and Maddy

Sunday, January 17, 2010

WAAAAHHHHH! Grandpa is gone! Yesterday was rough on Buggy. He simply loves my Dad and the jokes they share. When we dropped Dad at the airport, Alex just started sobbing. Dad is retired and has nothing holding him in NC (he retired there to be by us) so we are trying to convince him to sell his townhouse and move here.
We had a really quiet visit while Dad was here because the weather was cold and rainy. As Alex told us, grandpa has a pattern...r​ain, wind, rain, wind.

In medical news...we ran labs on Thursday. I am still waiting for a few things, but what we got back looked AWESOME! Some of the best labs we have seen in a while. When I look back over the last 18 months, we have added so many medications and interventio​ns to Alex's care not to mention new diagnoses. BUT with his new treatments he is more stable then he has been in a long time and we are so thankful for that!

We leave tomorrow morning for Houston. This is a trip that Alex and I are really looking forward to. We have no tests scheduled, no admission, pretty easy in our book. So we are looking forward to spending time with friends and visiting all Alex's girls! We will be staying with our good friends the Knights. Alex can't wait to see "his wife, Lauren". I was joking with bruce and Alex this week that we must be doing really good! Over the last few weeks I have received emails from several nurses and friends from the hospital "just checking in" because they haven't seen us in so long! I guess they just got used to us...it's only been 2 months! But on a positive note December was the first month since February of 2008 that we have not had to make a trip to Houston!

I will try and update from Houston. We will be seeing Dr. Koenig, GI, immunology, hematology, and a special needs dentist. We should be home Thursday afternoon.

A​li

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