I wanted to put out a short update about our first two appointments.
This morning we saw Dr. Navarro (GI) first. He is extremely pleased with the strides we have made over the last year. At this time last year, Alex was on TPN (IV nutrition) was struggling with pancreatitis and was on the brink of 2 major surgeries. This year he is on tube feeds and virtually pain free. H eis home and happy instead of in the hospital. We are not changing anything right now, but discussed long term feeding hopes.
Next we saw Dr. Koenig. She was also happy with Alex's current status. We discussed a few concerns. Mainly, his numerous high fevers over the last few months, his hand strength, and his fluid replacements and his continued tempermental port. Last we discussed a number of upcoming tests that we will schedule for April.
I will update again tomorrow after two more appointments.