All in all we had a pretty successful trip to Houston! Aside from not completely the test on Alex's spine and the hearing test we accomplished quite a bit!
We were discharged on Wednesday evening even though feeds were not back to our "normal" rate. Dr. k trusted us to continue increasing on our own. We went back and spent one last night in the hotel and dropped Mimi off at the airport early Thursday morning.
The hotel was WONDERFUL! The room was nice. The restaurant was great food. But most importantly the staff was incredible. They were so nice and accomodating. They went so far as to frame one of our photos for us and they gave Alex a transformer after hearing a little of his story. We were so amazed at their generosity and kindness. We will definitely go back.
I could go on and on about Alex's new tube. I cannot even begin to tell you the difference it is already making. And Alex woke up this morning feeling much better. I was even able to clean all the dried blood off the site. I am so thankful we were able to get it changed.
We are raying and believing that Alex will stay healthy and we will be able to spend the WHOLE holiday season at home. Our next scheduled trip to Houston is at the end of January.
Thank you for all your prayers.