I am going to attempt to update while I have a minute!
It has been a crazy 24 hours! Let me back up to Monday night.... Monday evening I got a call back from the GI nurse. We discussed the pain Alex was having around his J-tube and what needed to be done. She really felt that it sounded like surgery needed to see him. Tuesday morning I called the surgery nurse. Alex had a really rough morning. He was whining and crying and hurting and just not happy. At 10:15 I hadn't heard back from surgery and called Dr. Koenig. She made the decision that he really needed to be evaluated and the best way to do that was inpatient. So we quickly packed up to get on the road and down here before 5:00 for a direct admission.
I am amazed at how quickly things have been done this morning. I am so thankful to Dr. Koenig and our pediatric team for being so on the ball and moving things along. At this point the consensus is that the tube may be rubbing inside and causing irritation. The plan is to replace his tube tomorrow with one that is a better fit. Amazingly, they also think they can get done all the procedures that were supposed to be done under anesthesia in November! That would truly be a miracle.
They have also consulted hematology and GI to come see us. This will keep us from having to worry about our scheduled appt next week. They are running some labs and have a few more things they want to look at.
Overall, this should be a pretty quick trip!
Alex was so happy to see Dr. koenig and Keesha this morning. He smothered them with kisses and hugs and chatted their ears off. He has also enjoyed seeing all his girls!
I think that is all for right now. i will update as I know more!