Alex and Maddy

Alex and Maddy

Saturday, May 16, 2009

Can I tell you what a blessing it is to have NOTHING to update! That means that after 5 weeks out of the hospital my little Buggy is still going strong! We had a pretty uneventful week.

Alex continues to amaze me with that little brain of his! He is starting to read and I couldn't be prouder of him! He loves to do "schoolwork" and is learning the feeling of accomplishm​ent when he has worked hard and completed a task.

The highlight of our week was seeing our playgroup friends. It felt like forever since I had seen them...OK girls, it had been forever! We met at the park and after the first few minutes the kids disappeared and gave me an hour of adult conversatio​n! Always much needed. I am always touched at the friendships these guys share. At such a young age they truly care for each other and do not remember a life without knowing each other. They are so comfortable together. I cannot even remember the last time we had to break up a fight. They just truly enjoy each others company and play incredibly well together. I don't know that Alex will ever have another set of friends in his life who so easily acce​pt him with no questions asked. To them feeding tubes and ports and not eating just don't seem strange! They just see Alex and that is the greatest blessing!

Medically my "complaints" seem so trivial these days! Alex is struggling already with the heat. And it is only May so we have a LONG summer ahead of us! The day at the park was the first I saw of it this year. I didn't put Alex's cooling vest on because frankly it didn't seem that hot! Within a few minutes of playing he was bright red. So I have resigned myself to the fact that regardless of what it feels like the cooling vest is going on from now on! He is also getting overheated at times at home, but that is the summer in Texas!

Alex is also bruising extremely easily right now. We know it is most likely related to his anemia, but unfortunate​ly we haven't started his new supplement yet. Hopefully, we can get that squared away.

This week is another week of home life and then we head back to Houston for a few days of outpatient appts. I have already threatened Dr. Koenig that there is NO way she is admitting us. As soon as we get back my family starts arriving for Alex's birthday. We knew Dad was coming for another visit. Then Jenn and Skye decided they had so much fun last year they wanted to come again too. After the scene at the airport and the struggle of the last year, Mimi decided she "couldn't" miss his 5th birthday so she is coming too. So needless to say we will have a full house for a few days!

Ali

PS- Welcome to Alex's seco​nd cousin, Jaxson who was born a few weeks ago! Mark and Jenny- we are so happy for you guys and can't wait to see the newest member of our family!

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