Alex and Maddy

Monday, May 22, 2023

Special Weekend

 This weekend was SO special for both kiddos!

For Alex it was Senior Sunday at church. He didn't think Maddy and I would be there because he knew we had a horse show. We got up early Sunday morning to surprise him. Oh how I wish I had a picture when he saw us. The surprise and happiness was so apparent on his face. Keller United Methodist Church and the Pastors, Staff and Congregation have poured so much into Alex through the years. In so many ways this church has shaped him into the young man he has become. In Alex's life he has had so many hard times and disappointments of missed experience, but through the years he has only known love and it has come primarily through our playgroup that we joined when Alex was a month old and his church family. He has been shown acceptance, kindness and love in so many ways and so many times. The service was beautiful and emotional. It was so fun to watch him and his friends and parents experience this together. Some of these kids have been together at church since they were toddlers. There are not enough words to thank Pastors Chris and Molly and Pastors Jason and Estee and all of the associate pastors. Our Director of Children's Ministries Kristin Springer has loved Alex and accommodated us since Alex was 3. She is one of the most important people in Alex's life and has loved him so well. We are so grateful for our church and how they have supported us as that is not everyone's experience with churches and children with special needs. 

Alex and Dylan

Alex and Maddy

Alex and Erin are partners in crime at church!

Kristin has poured so much into Alex since he was little

Dream Team since 5th grade

Some of Alex's favorite people

Alex, Zach and Lane

Graduating Seniors 2023

Ellie is like family to us!

As many of you saw on Thursday night, Maddy was really not feeling well and I thought we might not make it to our horse show. It was a hard judgment call to make as a mom. She works so hard and she loves going to shows to compete and spend time in fellowship with our barn family. Ultimately I decided to go. She had another amazing show. She has made huge strides in her riding over the past month and it was apparent at this show. She rode beautifully. There are so many people who have encouraged her and allowed her to live her dreams. First and foremost, Tammi works so hard and constantly pours into Maddy to allow her to be her best both in riding and in life. She sees so much in Maddy and reminds her that she is amazing and God created her to be perfect in his eyes. Maddy's life is better and her confidence is growing thanks to Tammi. Sarah has been there every step of the way. She loves Maddy like a little sister. She plays with her and makes her feel special. Jeannie and Dawn have given us a barn home and are so kind and encouraging with Maddy. Three days a week they love on her and remind her that she is capable of great things. They allow her to help and be a part of everything they do at the barn and shows. Their encouragement means so much to Maddy and I am so grateful. Joy and Tracy own PD and Piper and without their generosity we wouldn't have had horses to start our new program. Not only have they given us the most amazing gift in a horse that Maddy love dearly, but they come to shows frequently to help and cheer us on. They have answered thousands of questions from me as I have learned the horse show world. And our amazing barn family, both Living hope Equine Therapy and Poco Vista Ranch...they love on Maddy, they cheer her on, we sit together and watch, we eat together and enjoy time sharing our lives. It truly is a family and our life is better because of them.




Ty is like a big brother to Moo

Dawn always has extra love for her Moo


Maddy loves PD dearly

Grandma Judy is always there for Maddy

Tracy is amazing and makes shows fun

My kids lives are hard, but also so AMAZING and that is because of the people in our lives. I could not do this without the love of so many and I am so grateful for the blessing of these people each and every day.
Ali

Saturday, May 13, 2023

Thoughts on Mother's Day

 As we approach Mother's Day, I have so many thoughts on this crazy, beautiful life I live.  From the time I was a little girl I desperately wanted to be a mother. I dreamed often of what my life would look like. I can assure it doesn't look anything like this life I have. And yet, I believe this is absolutely the life I was supposed to be living. I imagined weekends at the soccer field instead I spend my weekends at Horse shows. I imagined volunteering for the PTA. I have put in hundreds of hours volunteering, but they have been on hospital committees, at church and most recently for Maddy's therapy center. We have spent more hours in hospitals, doctors offices and therapy than I even knew was possible. But there have also been so many special experiences, trips, people and places; so much fun and laughter and love. I have made some of my best friends on this journey. I have watched my children be showered with love and kindness. I thought I would teach my children and I have in many ways, but they have taught me SO much more. My kids live a life where they are required to "fight" through each day. They both struggle with near constant pain and fatigue and yet you will rarely if ever find them feeling sorry for themselves or giving up on living and accomplishing whatever they set their minds to. They have warrior spirits in little tiny bodies with giant grins. The way they live requires me to expect more of myself and push through my own struggles with a positive attitude. This past few months I have watched them achieve in ways I didn't know was possible. I am watching Alex preparing to take a step that we were told would never happen. And I am watching Maddy overcome fears and weakness and grow stronger in body and spirit almost daily. I will always wish my kids had an easier path to walk. But I will never doubt God's plans or reasons because we are blessed with an AMAZING life that I am so grateful to be living.












Here are the links to the news story featuring Living Hope Equine Therapy and what it has meant to us:

Healing Power of Horses

Changing Lives with Equine Therapy

How Equine Therapy helps Veterans


Sunday, May 7, 2023

 How is this school year almost over!!!

I cannot believe we are in May. Maddy only has two weeks left of school and Alex is attending Orientation at DBU at the end of the month! I am  not sure how I have gotten to the point of having an almost fourth grader and a freshman in college, but I am trying to hold onto these moments and appreciate the place where we are. The kids are spending even more time together than usual right now. They have such a special relationship and while they will always be close, they are both aware that in three short months things will change. They are so very different...male and female, 10 years apart, shy vs. outgoing and yet they choose each other 100% of the time. It is such a gift to watch.

Photo courtesy of Tina W Photography

The last few weeks have been very much our "usual" routine. School and barn and family time taking up much of our days. I am always so very grateful for "normal". For so many years life was so unstable with constant illness and hospitalizations. I will take normal and boring any day!





Thank you for each of you that take time to read about our adventures and care about our family. I am so blessed to have so many people in our lives who are with us through our good times and our times. 

Ali