Update on our Crazy Week

 What a crazy few weeks it has been!

First let me start with an update on Alex. The good news is that he is starting to feel a bit better. While he is still losing some blood due to his colitis, it has slowed considerably. The medication seems to be working in this area. We did get bloodwork done Monday morning and while his blood counts were a little off, it was not to the level we feared. The bloodwork also gave us some idea of why he was feeling so bad. His blood sugar was the lowest we have seen in years (and doesn't make sense because he gets IV fluids with dextrose around the clock. He also had some electrolyte levels off which we were not as shocked about because a medication he needs is currently on backorder. The doctor is likely going to make some adjustments to his TPN (IV nutrition) due to these results. 

This year has had a rough beginning from a medical/insurance standpoint. We had an insurance change and both kids have been without necessary medical interventions while we find new suppliers and/or get prior authorizations. I have no doubt that this has not helped Alex and has been extremely time consuming and stressful for me. 

Then to really put me over the edge, my car check engine light came on Tuesday night. My car is 11 years old and we knew at some point we would need to replace it, but we were hoping to hold on a bit longer. Unfortunately after some investigation, the repairs necessary were going to be around $500 and we have to make a trip to Houston at the end of the month for appointments and were going to need to rent a car because we didn't feel safe taking the van that far. All of that to say much of this week was focused on trying to find a car that would work for us at a decent price. No small feat in this day and age. We are so blessed that we had some friends help us locate a good deal and we have a new vehicle as of this afternoon. 

For those of you who didn't see on Facebook, Alex felt great about his interview last week. We will know if he is accepted into that special program/housing by the end of the month. It has been fun to watch his excitement grow as attending college becomes a reality. We also got him registered for Orientation in may!

Our sweet Maddy Moo has been busy with school, ballet, tap, art, and of course horseback riding. She is hard at work preparing for her next show in March. 

We would ask for continued prayers for Alex's health, his college plans, and resolution of our insurance challenges.

Thank you for being our village!

Ali