A Much Better Week

 This week was MUCH better for Alex. He is pretty close to his baseline at this point. After many discussions between his care providers, we have come to the conclusion that he had a reaction to his iron infusion. I haven't spoken to his hematologist to figure out our plan going forward. But we are grateful that Alex is feeling better. We took advantage of the beautiful weather this week and squeezed a zoo trip in between all of Maddy's other activities. It feels SO good to get out and enjoy some "normal" activities. 

As our days and weeks go by, I find myself smiling at the life we have. I look around and see all the ways that my kids are surrounded with kindness and love. For Alex, I see it in our pastor making time out of his busy schedule to meet with him and discuss theology (and maybe video games) for almost two hours. I see it in the doctor who emails me every morning for two weeks to check in and see how he is doing. I see it in the friends who play games and chat and distract him so he can stop thinking about how much he hurts. For Maddy, I see it in her PT and Riding Coach and volunteers who go out of their way to get her stronger and more confident and allow to do what she loves with a huge smile on her face and the sound of giggles. I see it in her ballet teacher who changes her schedule so Maddy can not get so tired. I see it in her dog trainer and our partner in class who continue to encourage her and let her know she is doing a good job. For all of us I see so much love and kindness in our friends and family, near and far who continue to celebrate with us during joyful times and offer support during hard times. I am so grateful for the view I see each day as we navigate this crazy life.

Decorating Easter Cookies with Mimi

Always Mimi's boy

Best day of the week!

Zoo Day

Confetti eggs on her Ralph since he missed last week!

Dog Training Class

Thank you for all of the prayers over the past few weeks and for being a part of our journey!

Ali