Dresses and Doctors

The weeks are just flying by as we keep up our crazy schedule.

Maddy continues to love school, ballet and hippotherapy. Alex is working hard on his classes and is excited for Improv to start back up this week. We had multiple appointments again, but I think I'll start with the fun!

Last Friday we met two of Maddy's close friends from school at Candytopia, a travelling exhibit full of candy sculptures. The girls had a blast!

Alex saw Nephrology on Tuesday. His blood Pressures have been high on a regular basis again. they want us to try a different cuff, but if they continue to be elevated we will adjusted his medications.

Wednesdays continue to be Maddy's favorite day. She loves her physical therapist, her riding buddy, her volunteers and especially her Rebel!

Thursday was not Maddy's favorite day as we had to pick up her knee brace to try and keep her knee from dislocating so often.  Luckily she has adjusted quickly and it hasn't slowed her down at all.

Friday, both kids saw GI. Overall, Alex is doing really well. However we are having trouble with one of his tubes and the extent of the ulcers that were found on his last scope were concerning. The plan is to do an endoscopy and colonoscopy in the near future to try and reassess the ulcers and to recheck what is going on with his tube. He also needs a Spine MRI under anesthesia so it will all be done together. Maddy Moo will also be having an endoscopy and colonoscopy to try and figure out what is going on with her nausea, pain and weight loss. We did do an Xray to rule out an easy cause like constipation.
Yesterday we started our day at Main event which is always a family favorite!

Alex and Anaise

We ended the night with Maddy and I getting dressed up to attend Rode to Victory, the fundraiser for her Therapy Center. It was a fun night!

Maddy and her PT, Suzanne

We found Rebel!

Buster Bailey, Katie and Wyatt's Horse

Thank you to all who have been praying for us. Maddy has adjusted fabulously to school, she is loving her little class and learning so much already. Alex continues to feel well. Please continue to pray for good health and no anxiety!

Ali

If you would like to help Alex and the kids of Cook Children's, here is a link to his fundraiser: Alex's Fundraiser