Alex and Maddy

Thursday, August 1, 2019

A whirlwind of fun!

These past few weeks has been a drain on me as Mama, but it is so amazing to watch your kids getting to do what they love in life and exude joy!

Maddy has been ecstatic to spend the last few weeks in ballet camp and Horseback riding. We like to joke that she transforms from ballerina to cowgirl, but nothing makes her happier. Starting Hippotherapy has been the best thing. I have honestly never seen her as happy as when she is riding Rebel.

Ballet Camp Day 1

Rebel gets applesauce for a job well done



From ballerina

to cowgirl


Maddy loves the volunteers who help her each week.

Maddy's first time using reins

Miracle treat day

Breakfast with her BFF

BEST DAY EVER





On a Trail ride




Did I mention we've also been to the pool a few times?
While Maddy has been dancing and riding, Alex has been acting. All year he looks forward to Summer Theater Workshop. I love to watch the hard work that goes into this three weeks, but my favorite part is the friendships that form and the sense of unity that comes from working towards a common goal. This year Alex was cast as the King of hearts in Alice in Wonderland. He loves taking a role and making it is. He really is quite a good little actor and it is so fun to watch him come to life on stage.


STW day 1

Blocking Scenes



Dress Rehearsal







Opening Night

While the kids were busy enough...I challenged myself and competed in CG games. It was a grueling competition full of running and 12 lanes of hard exercises. I was nervous to do it, but wanted to prove to myself that I can accomplish anything I set my mind too. The amazing thing about CG is the community atmosphere that is always felt. The amount of encouragement from fellow competitors, judges and volunteers was enough to make anyone feel inspired. It was one of the hardest things I've done, but the sense of pride I left with was a feeling I won't soon forget.


Medically it has been a mixed bag. Alex has been doing pretty well overall. He is having an MRI this weekend to look more closely at his pituitary gland. he will also have a procedure next week with anesthesia, but overall he is doing well.
Maddy has continued to struggle. She is having stomach pain and nausea daily. She hasn't been eating well due to this and has lost a few pounds. She continues to struggle with her joints and specifically her knee which is dislocating multiple time a day. We are waiting on insurance to work with us so we can get her in for a brace and some therapy to address these issues.

Thank you for walking this path with us...for celebrating the highs and struggling through the lows with us.
Ali

Alex is once again raising money for Cook Children's Hospital. If you would like to donate, please visit his fundraising page.

17 comments:

  1. 100% HERPES Cured in my family. Dr. AKINTUNDE has been a testimony to me and my mom who suffered 18 years Herpes with frequent outbreak, I was diagnosed of Herpes two years back which I thought was the end of my life then. So everyday I kept on searching for solution to my health problem online when I came in contact with Dr. AKINTUNDE and i told him about my situation and all what I was going through, so he assured me that his herbal medicine will eradicate this virus from my body system in just four weeks of Using his Herbal medicine, at first I thought it was impossible to cure this Virus because I have suffered so many breakdown and i live on daily medication. Finally Dr. AKINTUNDE prepared some herbal medicine and sent to me through DHL courier which I took as he directed me, so after the last week of taking my herbal medicine, I felt different from before no more pains, then i went back to the hospital for my test and my result was Herpes Negative I had to go to another hospital for test again and I was also confirmed Negative and free of this virus today, that is why i thanks Dr. AKINTUNDE for my life and also thank him on how he sent his herbal medicine to my mom too. just the herbs and roots herbal medicine that he sent to my mom and directed her on how to use the herbal medicine, Behold after my mom took the herbal medicine she was also confirmed free of this virus with no symptoms again. Sir. Only God can reward you for being a blessing that brought Joy back to my life and family. Anyone in need can contact. Dr. AKINTUNDE @WhatsApp... +12068994141

    ReplyDelete
  2. 100% HERPES Cured in my family. Dr. AKINTUNDE has been a testimony to me and my mom who suffered 18 years Herpes with frequent outbreak, I was diagnosed of Herpes two years back which I thought was the end of my life then. So everyday I kept on searching for solution to my health problem online when I came in contact with Dr. AKINTUNDE and i told him about my situation and all what I was going through, so he assured me that his herbal medicine will eradicate this virus from my body system in just four weeks of Using his Herbal medicine, at first I thought it was impossible to cure this Virus because I have suffered so many breakdown and i live on daily medication. Finally Dr. AKINTUNDE prepared some herbal medicine and sent to me through DHL courier which I took as he directed me, so after the last week of taking my herbal medicine, I felt different from before no more pains, then i went back to the hospital for my test and my result was Herpes Negative I had to go to another hospital for test again and I was also confirmed Negative and free of this virus today, that is why i thanks Dr. AKINTUNDE for my life and also thank him on how he sent his herbal medicine to my mom too. just the herbs and roots herbal medicine that he sent to my mom and directed her on how to use the herbal medicine, Behold after my mom took the herbal medicine she was also confirmed free of this virus with no symptoms again. Sir. Only God can reward you for being a blessing that brought Joy back to my life and family. Anyone in need can contact. Dr. AKINTUNDE @WhatsApp... +12068994141

    ReplyDelete
  3. Happiness is all i see now I never thought that I will be cured from HERPES virus again. I have been suffering from a deadly disease (HERPES) for the past 3 years now, I had spent a lot of money going from one places to another, from churches to churches, hospitals have been my home every day residence. Constant checks up have been my hobby not until this faithful day, I was searching through the internet, I saw a testimony on how DR Onokun helped someone in curing his HERPES disease, quickly I copied his email which is dronokunherbalcure@gmail.com just to give him a test I spoke to him, he asked me to do some certain things which I did, he told me that he is going to provide the herbal cure to me, which he did, then he asked me to go for medical checkup after some days after using the herbal cure, behold I was free from the deadly disease, he only asked me to post the testimony through the whole world, faithfully am doing it now, please brothers and sisters, he is great, I owe him in return. if you are having a similar problem just email him on : Dronokunherbalcure@gmail.com

    ReplyDelete
  4. Life has not been so easy for me, i almost gave up on getting cured of HSV2 because i have tried many treatment and still don't work for me, so i was going place to place just for me to search for herbs cure or any solution to my problem and i also have three kids to take care of, that same period my husband die in an accident on it way coming home so life was very tough for me, so when i was going through the herbs site to find a cure for my problem i saw a story about a lady testify about DR.Imoudu, so i said to my self let me give a try to see if my problem can be solved, because i have spend alot of money In the hospital and their was no cure for it, so i contacted DR.Imoudu that afternoon of it and he gave me instruction how i will go about it and he sent me a herbal medicine which I took according to the way he instructed me to do. After taking the medicine for two weeks i saw a changes on my body, then i called the Dr and told him about it and he said i should go for test. i can't believe when my result came out it was negative, i was very happy to share this great testimony to the world there is real cure for #herpes you can also contact DR.Imoudu Email: DR.IMOUDUHEALERTEMPLE@GMAIL. COM also WhatsApp him +2348109609753..
    He also have herbs medicine to cured the following diseases;
    Diabetes, Lupus, Gout, Hepatitis A,B, Infertility, HIV/AIDS, CANCER, WART,ALS CURE/DIABETES CURE/EPILEPSY/HPV CURE/LOOSE WEIGHT AND BODY/EX-BACK/stroke

    ReplyDelete
  5. Hello, everyone! I,m here to explore blogs and forum about the wonderful and most safe cure for (Herpes Virus).I was positive to the deadly virus called herpes and i lost hope because i was out casted and rejected even by my closet friends.i searched on-line to know and enquirer about cure for Herpes and i read someone testimony on how he was cured from Herpes so i decided to contact the same herbalist because i know that nature has the power to heal everything.i contacted him to know how he can help me and he told me never to worry that he will heal me with the natural herbs from God!after 2 days of contacting him, he told me that the cure has been ready and he sent it to me via DHL and it got to me after 3 days!i used the med as he instructed me (MORNING and EVENING) and i was cured!its really like a dream but i am so happy!thats the reason i decided to also add more comment of Him so that more can be saved just like me!and if you need his help, you can email him on nativehealthclinic@gmail.com, Instagram IG: @dremmanuel2 or whatsapp +2348140073965 I,m neme amber and you can get in touch with me via nemeamber@gmail.com..Contact him for help at Herpes virus HIV/AIDS CANCER COPD BRAIN TUMOR All kind of virus and disease

    ReplyDelete
  6. Hello, everyone! I,m here to explore blogs and forum about the wonderful and most safe cure for (Herpes Virus).I was positive to the deadly virus called herpes and i lost hope because i was out casted and rejected even by my closet friends.i searched on-line to know and enquirer about cure for Herpes and i read someone testimony on how he was cured from Herpes so i decided to contact the same herbalist because i know that nature has the power to heal everything.i contacted him to know how he can help me and he told me never to worry that he will heal me with the natural herbs from God!after 2 days of contacting him, he told me that the cure has been ready and he sent it to me via DHL and it got to me after 3 days!i used the med as he instructed me (MORNING and EVENING) and i was cured!its really like a dream but i am so happy!thats the reason i decided to also add more comment of Him so that more can be saved just like me!and if you need his help, you can email him on nativehealthclinic@gmail.com, Instagram IG: @dremmanuel2 or whatsapp +2348140073965 I,m neme amber and you can get in touch with me via nemeamber@gmail.com..Contact him for help at Herpes virus HIV/AIDS CANCER COPD BRAIN TUMOR All kind of virus and disease

    ReplyDelete
  7. i already gave up on ever getting cured of HSV2 because i have try many treatment none of them work out for me i have go to different hospital they always tell me same thing there is no cure for herpes when i came across a post about Dr ohunyom, in the net from a lady called Angela i contacted him and he reassured me with him herbal medicine which i took according to the way he instructed, that how i was cured. I doubted at first because i have been to a whole lot of reputable doctors, tried a lot of medicines but none was able to cure me. so i decided to listen to him and he commenced treatment, and under two weeks i was totally fee from #Herpes. i want to say a very big thank you to DR ohunyom for what he has done in my life. feel free to leave him a message on email drohunyom@gmail.com and also WhatsApp him +2349060579973..
    He can still be able to help you with this herbs medicine:
    1...ALS CURE/DIABETES CURE/EPILESY/HPV CURE/LUPUS/HEPATITIS/CANCER/GOUT      

    ReplyDelete
  8. i already gave up on ever getting cured of HSV2 because i have try many treatment none of them work out for me i have go to different hospital they always tell me same thing there is no cure for herpes when i came across a post about Dr ohunyom, in the net from a lady called Angela i contacted him and he reassured me with him herbal medicine which i took according to the way he instructed, that how i was cured. I doubted at first because i have been to a whole lot of reputable doctors, tried a lot of medicines but none was able to cure me. so i decided to listen to him and he commenced treatment, and under two weeks i was totally fee from #Herpes. i want to say a very big thank you to DR ohunyom for what he has done in my life. feel free to leave him a message on email drohunyom@gmail.com and also WhatsApp him +2349060579973..
    He can still be able to help you with this herbs medicine:
    1...ALS CURE/DIABETES CURE/EPILESY/HPV CURE/LUPUS/HEPATITIS/CANCER/GOUT      

    ReplyDelete
  9. Dear viewers I am here today to appreciate the good work of Dr Ohunyom, for helping me curing my HSV 1&2 Disease, I contacted the virus from my Partner, i found out he was cheating on me, so i broke up with him, 2 month later i went to test myself in the hospital when i was seeing sore on my mouth and Private areas, i was diagnosed of HSV 1&2. i tried using the acyclovir medicine but it didn't help in curing it, i went on a search and found out Dr Ohunyom curing people illness, and so i got his email and i was told how i can get his herbal cure, 5 days later i received his medicine after using it for 2 weeks i was tested again and was confirm negative, today i am totally free. If you are over there looking for solution email drohunyom@gmail.com or contact him on whatsapp  +2349060579973 today and share your own testimony. And He also has herbal cure for the Following DISEASES, eczema,urethra wart,chronic problems.Herpes, Cancer, Als,Hepatitis, Diabetes, HPV,Infections,ulcer ETC

    ReplyDelete
  10. i already gave up on ever getting cured of HSV2 because i have try many treatment none of them work out for me i have go to different hospital they always tell me same thing there is no cure for herpes when i came across a post about Dr ohunyom, in the net from a lady called Angela i contacted him and he reassured me with him herbal medicine which i took according to the way he instructed, that how i was cured. I doubted at first because i have been to a whole lot of reputable doctors, tried a lot of medicines but none was able to cure me. so i decided to listen to him and he commenced treatment, and under two weeks i was totally fee from #Herpes. i want to say a very big thank you to DR ohunyom for what he has done in my life. feel free to leave him a message on email drohunyom@gmail.com and also WhatsApp him +2349060579973..
    He can still be able to help you with this herbs medicine:
    1...ALS CURE/DIABETES CURE/EPILESY/HPV CURE/LUPUS/HEPATITIS/CANCER/GOUT

    ReplyDelete
  11. Greetings
    Are you suffering from #HERPES_VIRUS or other stds I can’t believe this is really true I never believe there is cure to this hsv 2 because all the hospital have told me there is no cure to it, few months ago I saw this man email DR.Ohunyom on internet from a testimony share by someone who he help with his herbal cure I contact his email and ask for his help also, that is how he inform me about the cure process and this man sent me a herbal medicine which I took according to the way he instructed for 2 week I can’t believe when I go for test my result come out negative i am so happy to share this to the world there is real cure to herpes you can also contact DR.Ohunyom through his email now drohunyom@gmail.com and also WhatsApp him +2349060579973 and He also have herbs medicine to cured the following diseases; eczema,urethra wart,chronic problems.Herpes, Cancer, Als,Hepatitis, Diabetes, HPV,Infections,ulcer

    ReplyDelete
  12. Greetings
    Are you suffering from #HERPES_VIRUS or other stds I can’t believe this is really true I never believe there is cure to this hsv 2 because all the hospital have told me there is no cure to it, few months ago I saw this man email DR.Ohunyom on internet from a testimony share by someone who he help with his herbal cure I contact his email and ask for his help also, that is how he inform me about the cure process and this man sent me a herbal medicine which I took according to the way he instructed for 2 week I can’t believe when I go for test my result come out negative i am so happy to share this to the world there is real cure to herpes you can also contact DR.Ohunyom through his email now drohunyom@gmail.com and also WhatsApp him +2349060579973 and He also have herbs medicine to cured the following diseases; eczema,urethra wart,chronic problems.Herpes, Cancer, Als,Hepatitis, Diabetes, HPV,Infections,ulcer

    ReplyDelete
  13. Happiness is all i see now I never thought that I will be cured from HERPES virus again. I have been suffering from a deadly disease (HERPES) for the past 3 years now, I had spent a lot of money going from one places to another, from churches to churches, hospitals have been my home every day residence. Constant checks up have been my hobby not until this faithful day, I was searching through the internet, I saw a testimony on how DR Ohunyom helped someone in curing his HERPES disease, quickly I copied his email which is
    drohunyom@gmail.com just to give him a try I spoke to him, he asked me to do some certain things which I did, he told me that he is going to provide the herbal cure to me, which he did, then he asked me to go for medical checkup after some days after using the herbal cure, behold I was free from the deadly disease, he only asked me to post the testimony through the whole world, faithfully am doing it now, please brothers and sisters, he is great, I owe him in return. if you are having a similar problem just email him on (drohunyom@gmail.com) or you can whatsApp him +2349060579973 and He also has herbal cure for the Following DISEASES, eczema,urethra wart,chronic problems.Herpes, Cancer, Als,Hepatitis, Diabetes, HPV,Infections,ulcer ETC

    ReplyDelete
  14. Hello, everyone! I,m here to explore blogs and forum about the wonderful and most safe cure for (Herpes Virus).I was positive to the deadly virus called herpes and i lost hope because i was out casted and rejected even by my closet friends.i searched on-line to know and enquirer about cure for Herpes and i read someone testimony on how he was cured from Herpes so i decided to contact the same herbalist because i know that nature has the power to heal everything.i contacted him to know how he can help me and he told me never to worry that he will heal me with the natural herbs from God!after 2 days of contacting him, he told me that the cure has been ready and he sent it to me via DHL and it got to me after 3 days!i used the med as he instructed me (MORNING and EVENING) and i was cured!its really like a dream but i am so happy!thats the reason i decided to also add more comment of Him so that more can be saved just like me!and if you need his help, you can email him on drucheherbalmedicine@gmail.com  , or WhatsApp +2348050777527  I,m neme amber and you can get in touch with me via drucheherbalmedicine@gmail.com  ..Contact him for help at Herpes virus HIV/AIDS CANCER COPD BRAIN TUMOR All kind of virus and disease //...

    ReplyDelete
  15. Hello! I'm very excited to inform everyone that I'm completely cured from my HSV 1&2 recently. I have used Oregano oil, Coconut oil, Acyclovir, Valacyclovir, Famciclovir, and some other products and it's really help during my outbreaks but I totally got cured! from my HSV with a strong and active herbal medicine ordered from a powerful herbalist and it completely fought the virus from my nervous system and I was tested negative after 12 days of using the herbal medicine. I'm here to let y'all know that herpes virus has a complete cure, I got rid of mine with the help of Dr Oyagu and his herbal exploit. Contact him via email: oyaguherbalhome@gmail.com call or whatsApp him on +2348101755322.

    ReplyDelete
  16. 5 years ago I had warts, I was treated with some liquid applied to the warts they continued to grow and spread... The next 2 doctors did laser surgery to remove them. 1 year after the surgery, they grew back close to where the 1st ones were' so I was finally told it was hpv. I have had it for very long time, I contract it from my cheated boyfriend and I found out he was also infected and I end up the relationship between us. the warts was so embarrasses because it started spreading all over I have be dealing with this things for very long time the last treatment I take was About 2 years ago I applied natural treatment from Dr onokun herbal cure, a week after applying the treatment all the warts was gone. it's now 2 years and some months I don't have single wart or any symptoms of hpv. wow"" it's great, Dr onokun has finally cured me. Anyone living with hpv contact Dr onokun for natural treatment.
    His email address: dronokunherbalcure@gm‎ail.com or website: https:// Dronokunherbalcure.wordpress.com/ page at: https://www.facebook.com/naturaltreatmentcenter1

    ReplyDelete
  17. Hello everybody,I don't just know the reason why some people still finding it difficult to believe that there is a cure for herpes, I have been suffering from herpes since last three years with my husband but today I am happy that am cure from it with the herbal medicine of Dr Oluta the great healer,I was browsing the internet searching for help when I came across a testimony shared by someone on how Dr Oluta cure his herpes I was so much in need of getting his treatment but after all Dr Oluta brought a smile to my face with his herbal medicine. I am so much happy today that we have someone like this great healer out there, so my people out there kindly contact this great healer on him Email: dr.olutaspellcaster@gmail.com please sir keep your good work cause there are people out there who is in need of your healing medicine.once more  you can call him or whatsApp his number : +2349065326267,God bless you sir..

    ReplyDelete

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