School and Surgery

This week seems to have flown by! It was Maddy's first week back to school. She was counting down the days until she could see her friends and teachers again. By Tuesday morning she was almost giddy with excitement. I am so happy that she loves school, her teachers and her friends so dearly.

Tuesday we declared "best friend day". Alex and I (and Maddy) miss Erin dearly. But our friendship continues even though she no longer spends half her week with us. Erin and I got to spend some time enjoying each other and catching up while Alex and I managed to get some cuddles from precious Greyson. Oh and Mia had to get love from her Erin too!

Wednesday Alex had a "surgery" as he would call it. He had multiple procedures all done under anesthesia. He had an endoscopy, both of his feeding tubes changed, a deep dental cleaning and two teeth extracted. It has been amazing to watch him grow and mature over the past few years. A procedure like this (or really any anesthesia) was once enough to cause weeks of worry, interrupted sleep and lots of tears. Wednesday he handled himself with bravery and strength and didn't even show any signs of fear until the final moments before he had to say goodbye to me. and then in true Alex fashion, he asked me to pray with him. And so together we held hands and prayed for peace and for Alex to know he is never alone. We recited a bible verse and kissed goodbye. For 14 years, we have been a team my brave son and I. While I wish I could make his life easier, I am grateful for the way this life has shaped my view on so many things. I am truly changed because of the miracle I gave birth too. Knowing the day would not be easy, we had some special people step up to make it as easy as possible. My dear friend, Stephanie offered to keep Maddy after school so I wouldn't have to worry about what time we got home. Our angel, Sonny, who is the dearest friend to Alex came up and brought me coffee and kept me company so the time would pass more quickly. Beverly, Zoey's trainer sent pictures of our girl to put a smile on Alex's face when nothing else could. The sweet people that have been placed in our life make each day so much better. 

Bev always sends the best commentary

"Hi Alex"

"I spilled the water"

 "And I don't care"

"Am I still in Trouble?"

Maddy and Ally hanging out after school!

Alex is doing really well. He is still a little tired, but doing really well overall.

We continue to feel blessed by the love and support of those who walk beside us on this journey. Thank you for your love and prayers.

Ali

Zoey's Fundraiser