Alex and Maddy

Alex and Maddy

Sunday, September 23, 2018

A Quiet Week

This week has been pretty quiet as my Maddy Moo got sick Tuesday evening. We wound up spending most of the week at home trying to recover with a few doctors appointments thrown in.
 On Tuesday, Mad did get new "pretty feets" (braces she wears for her feet and ankles). This times she chose puppy dogs. They are really cute. She can't wait to get back to school to show all of her friends.

Alex had an appointment with the endocrinologist. We ran some testing and are starting the process to begin growth hormone. Unfortunately, our doctor has already warned us we are probably in for a fight with insurance as they are likely to deny it despite the fact that he is well below the growth chart and dropping.
In other news, we think we have finally found a solution to Alex's port not working correctly. This week we used a bigger needle and it has worked really well. It was a little more painful for Alex, but hopefully he will get used to it and it will continue to work as well as it has this week.

Oh and Alex got a MUCH needed haircut!


I have a few prayer requests this week... for Maddy to get back to 100%, for Alex to continue to feel better and his port to work well. I also have a prayer request for myself. A few weeks ago, I went to the dermatologist for a skin check and they biopsied a spot by my nose that looked suspicious. It came back as a form of skin cancer. I have an appointment with a plastic surgeon on October 2nd to discuss the surgery I will be having to remove layers of skin until we are sure it is all gone.  Please pray for an easy removal and quick recovery as well as the kids to stay healthy while I take care of myself.

Ali

Here is the link to Alex's Fundraiser if you feel called to give:
https://www.extra-life.org/participant/AL3X684

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