A Mixed Bag

This week was a mix of good and bad.

I'll start with the bad. Both kids have been feeling pretty cruddy. Alex has had some of the worst pain, he's had this year. We are waiting on a procedure in November that should help and then we need to make decisions about a major surgery that would be more of a long term solution. I feel bad as we try to keep him engaged and participating in life when he'd rather lay in the bed all day. Maddy is complaining daily of stomach and leg pain. We are trying to get to the cause of her pain so we can help her feel better!

The good...We had some fun events this week as well. Maddy continues to thrive at school. She is so happy to be there. I am so grateful for there love and care for Mad. Alex participated in the Cook Children's Haunted House this week where patients participate in scaring not only other patients, but also doctors, nurses and staff. It is something he really looks forward to and enjoys. Yesterday we went to a VIP showing of the Fort Worth Air Show for the sixth year in a row. We always enjoy it and appreciate Make A Wish inviting us. It was a little less enjoyable yesterday as out temps dropped from 86 degrees on Thursday to 56 degrees yesterday! BRRRR!!!We were all freezing!

Maddy's School picture

My Sassy Pants

Hair Cut Day

Air Show

In the tent waiting to see the Blue Angels

Alex's version of trying to stay warm

Alex and Erin

Sibling Love

Air Show 2017

Pretty Girl

Trying to stay warm this morning!

Please continue to pray for these precious babies. Prayers that they will feel better and be able to enjoy all of the fun we have planned over the next week to celebrate Halloween and Maddy!

Ali

PS- Alex's Fundraiser has one more week. He is doing great, but would be grateful for any other donations to help Cook Children's Hospital! Link to donate