Alex and Maddy

Alex and Maddy

Friday, January 27, 2017


When I started this blog almost 10 years ago, I promised myself that I would be honest. So while I always try to focus on the positive, I also need to be honest about he struggles we face. So while we continue to struggle with the kids not feeling well, we are CHOOSING to march on and try to find joy in our days. Thank you to all of you who reached out last week. Your friendship, your support, your prayers mean so much.

Alex continues to suffer from significant stomach pain. Alex stomachs hurts every day (and has since he first told me when he was 2) and he never complains. It is just a fact of life for him. But this is something new and has him telling me he hurts and even asked to lower his feeds. We are trying to get tot he bottom of what is going on. We see GI on Tuesday and he will have an endoscopy on Wednesday. In the meantime, he perseveres in a way that always amazes me and still managed to go to violin, acting and golf this week as well as tag along to Maddy's cooking class. One bright spot has been watching the bond between Alex and Zoey (Alex's service dog) grow closer. Zoey's ability to detect and alert when Alex isn't feeling well is incredible. Now if we could just nail down some of her more "basic" training, it would be great. She will be going back to the trainer over the next few weeks which is always a hard transition.

Maddy is Maddy. She is such a hot mess. She can be so sweet, but she is so sassy and so stubborn. She drives this mama crazy most days. But just when I think I may kill her, she says or does the sweetest things! She also isn't feeling great, but it isn't quite as clear. She is just really fatigued and fussy. She is struggling in therapy and when things are hard for Maddy she isn't very nice to deal with! Her poor therapists have been through the ringer with her this week. We have some amazing friends in our lives and one special family gifted Maddy a hot wheels ride on for Christmas. It took us a few weeks for the weather to cooperate enough to enjoy it, but boy has that brought some smiles this week. Maddy wants to ride her "speed racer" all day, every day.

We are so grateful for all of our friends and family who smile with us through the good times and support us during the hard times. We are so hopeful that days of feeling better are just around the corner.


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