Alex and Maddy

Alex and Maddy

Monday, December 24, 2012

Merry Christmas!

Merry Christmas!
 
 
 
I have really put off this blog update for a long time. I wasn't quite sure what to say or how to say it. I have finally decided to give it a go. The last month has had some incredible highs and also some pretty low lows.
 
 
I will start with the highs as I always prefer to focus on the positives. Bruce LOVES his new job. He is happy (happier then I have seen him in years). He looks forward to work. He finds it interesting. He likes the people. It is all around a great fit. I am so thankful for the many of you who prayed for us and with us as we awaited news on this position.
 
Another high is that Alex continues to thrive at school. He loves his classmates. He LOVES his teacher. He is doing great academically. I am so grateful I prepared him well enough that he has not missed a beat. He is attending about 4 hours a week and while we have played around with the schedule we seem to have found a good fit. Unfortunately, we had to hold him out most of the last two weeks as there is quite a bit of flu going around. We did allow him to attend his first holiday party!
 
As for the lows, Alex has had a rough few months medically. As some of you may remember, when we were in Houston in October our GI doctor decided to trial Alex off of nightly IV fluids. Pretty shortly afterwards, Alex started to decline. We were in contact with multiple doctors almost daily. While all the doctors and nurses tried to decide what was best, Alex was deteriorsting rapidly in front of us. He became extremely lethargic, stopped participating in his favorite activities and became extremely pale and even skinnier then normal. We even had one nurse who evaluated him tell us she felt he was headed for an imminent crash. We were very concerned for his well being. After many weeks of discussion, it was decided that it would be best for us to seek a new GI opinion, specifically with a doctor who specializes in motility disorders. We are very anxious to see this doctor right after the new year. In the meantime, Dr. K and a complex care pediatrician are working together and have reinstated IV fluids pending our appt. Our pediatrician was amazed at the turn around after just one night back on fluids. We have seen some improvements, but our Bug doesn't have all his energy and strength back quite yet. We are so grateful To Dr. K and the other doctors that worked very hard to help Alex.
 
Alex is really excited for Christmas. He has loved searching for Elfie each day and seeing what mischief he has gotten in to. Grandpa is hear for the holidays so it has been busy. We have also enjoyed activities with playgroup and cub scouts. We continue to feel so blessed by these two amazing groups who have meant so much to us.
 
In other news, my sweet Hayley girl (our 11 year old black lab) had to have surgery on her foot this past week. She is recovering well and I am so glad she made it through surgery without any complications. Have I mentioned we LOVE our vet!
 
As this year comes to a close, we are so thankful for one of the best years for Buggy. Our prayers for everyone to have a very Merry Christmas and a Happy, Healthy New Year!
 
Ali

1 comment:

  1. I hope the overnight fluids continue to help! Merry Christmas and Happy New Year!

    ReplyDelete