Alex and Maddy

Alex and Maddy

Thursday, August 27, 2009

We are settling into a good routine. Alex and I are doing school for about two hours each morning. He has therapy twice a week and I am back going to the gym. So it is nice to be on a schedule and feel somewhat normal.

I th​ought Monday was going to be a hard day for me. It would have been Buggy's first day of school. One of those milestones that every mother remembers. So I was shocked to wake up Monday morning and be FINE! I met "my girls" (playgroup) for breakfast after they had dropped the kids off and we had a great time. Buggy helped by telling me he was glad he was homeschooli​ng because otherwise "he would miss me so much he would cry all day". My sweet boy always knows the right things to say!

As for medically, we are trudging along. Things are pretty stable. We will keep doing what we are doing and see if Alex's body can adjust to less fluids and space out his need for them. he has been really pale all week but is acting okay. My only other concern is that he is starting to bruise again. We see hematology towards the end of September so we'll see what they say.

Thanks for being a constant blessing in our lives.
Ali

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