Some good, some bad this week...

On a good note: I have Alex's feedings up to half the rate they used to be. For 2 weeks I couldn't get them past, one fifth the usual rate. And we are back to full strength formula instead of cutting it with sugar water. He is starting to gain back some of the weight he lost.

We also LOVE the stroller. We are so happy with it. It would have been really upsetting to spend that much money and then not be crazy about it so we are glad to like it so much.

We only have 2 weeks until our appt with the mito specialist. I am anxious to gt this moving along!

Now for the bad:

Alex's therapist (who most of you know we LOVE) is leaving his therapy center. She is going to a new center, but it is private pay. We are talking to Elizabeth and trying to decide what to do. Her and Alex have a great relationshi​p and he has come so far with her. Besides, I really like her too!

Still no word on the medicaid program. I am hoping to hear soon. I could really use the financial and time break right now!

Thanks for all your prayers and support.

Ali