Alex and Maddy

Alex and Maddy

Friday, December 21, 2007

I feel like I always post how hard things are so I wanted to post about a few blessings this week...

The stroller has been submitted to insurance for authorizati​on. Our fingers are still crossed to get it done by the end of the year.

We have the name of a dr that could possibly help us sort out the Mitochondri​al stuff in Houston. She has gotten rave reviews from numerous parents.

One of my oldest and dearest friends, Erin, (who is a marine and overseas right now) had her church make Alex and I prayer quilts. They are gorgeous and it is so comforting to know how many people are praying for Alex. I will post pictures as soon as I get some taken.

Alex loves the feeling of weight on him. He actually puts pillows on top of himself to fall asleep. Elizabeth (his therapist) and I had talked about getting him a weighted blanket. When I started looking they were between $80 and 150. We decided it was something we couldn't afford right now. I asked Mom about making one. She emailed a lady about how to do it. The woman emailed mom and offered to make Alex a blanket for free after Christmas. It is people like that who make this world a nicer place.

Alex'​s therapist is working on getting Alex a special tricycle to help with his strength and endurance. He loves it. He has been using it at therapy and is so excited to have his own bike.

We also have the name of a place that does free therapeutic horse back riding. We are hoping to get Alex started in that after the new year.

The biggest blessing of all is that Grandpa is here!!!

So as you can see, all in all a pretty good week! We spoke to cincinnati Wednesday morning. Dr. Putnam's office is trying to get in touch with the neurologist​s office since I have had no luck. I will let you know as soon as I know anything.

Ha​ve a very Merry Christmas!



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