Alex is still fighting the cold/reacti​on that started last week. We think it is a cold, but we aren't really sure. We leave tomorrow to head to Galveston, TX to spend the week.

I have uploaded some links into the "links" section. There are two videos: one is a video montage I made of Alex. The other is a video about eosinophili​c disorders. The other links are pages that explain about EE or food allergies.

L​ove,

Ali

I am not sure whether to consider this good or bad...

We have decided that Alex was not sick this weekend, but was reacting to something. On Saturday we went to a neighborhoo​d cookout. There was a popcorn maker with a bunch of kids eating popcorn and Bruce let Alex have a bite of cotton candy. Sunday morning Alex started telling me he didn't feel well. I didn't think anything of it. All day Sunday he complained of not feeling well, but he was still acting okay. Monday he came down with the fever. It never got above 101. He also had a lot of congestion and clear runny nose. Today he had diarhea and a red diaper rash. All of the above are signs of a reaction. When he is sick his fever is ALWAYS above 103.5. So while we are glad he isn't sick it is always dishearteni​ng to have another reaction.

Ju​st wanted to update everyone.

Lo​ve,

Ali

PS-The fever has been gone since this morning!

Good News and Bad News...

Good news is Cincinnati called us with an appointment. We are scheduled for November 16th. That is the day that Alex will get his button. They will also see if the eosinophils are better in his upper GI tract.

Bad News: Alex is sick again. He has a cold. He is really congested and has a runny nose. So far his fever is only 101. Keep your fingers crossed.

Lov​e,

Ali

Alex is feeling a little better. his fever broke this morning after 2 days of 103-105. He is exhausted still. He slept 14 hours last night and has already been sleeping for 4 hours this afternoon. He is happy and playing when awake though.

Alex is doing great with his tube. We are changing his feeding schedule and trying to get more of his calories during the day. The girls on my message board pointed out that this is more natural for the body. Today he has had almost all of his formula during the day, which is great. Right now he is getting 5 feedings that take an hour each. We will start working on decreasing the amt of time by increasing the rate that the pump delivers the formula into his stomach. His reflux has been much better with these bigger feedings than with the slow continuous drip he started on.

Alex and I start school tomorrow. We are very excited to start our curriculum. We are using a christian based reading heavy curriculum. We are adding some math and beginning phonics to it.

Ali

UGGG! Alex is sick. Yesterday he woke up from nap saying he wasn't feeling well, but he was acting fine. He played all afternoon. Around dinner time I sat down with him to read him a story and he felt warm. I took his temperature and it was 102.9. Overnight it varied quite a bit. He was really restless. The highest it got was 104.6. The good news is it didn't shoot over 105 like it usually does. Our plan with Dr. Benzick is to head to the ER if it goes over 105 to rule out a serious bacterial infection. We are just watching him at this point. I will not call/take him in unless things get worse. The hard part with Alex is he never complains or cries. I have no idea what could be wrong, he is insisting nothing hurts, but he also said that last time he had tonsillitis and a double ear infection! It is sad, but he is so used to not feeling well that a virus just isn't worth him crying over. Anyway, I'll keep you updated.

Lov​e,

Ali