Running Crazy

The past few weeks have been absolutely crazy! It has been a mix of volunteer work, fun times and medical appointments. But all together I haven't known if I am coming or going.

We returned from Disney and were surprised when the commercial we filmed for Cook Children's hospital was aired during the Super Bowl pregame show! We had no idea it would be airing and it was so fun to see it on such a big day. That week we also attended Cook Children's day at the Fort Worth Stock Show and Rodeo and Alex and I spoke on the importance of listening to patients and Families at the Town Hall for all 8,000 employees in the Cook Children's Medical System.

Fun at the Rodeo

While Alex and I were busy at the hospital, Maddy kept busy with ballet and Hippotherapy.

Maddy was really excited for her Valentine's Day party at school.

Last week started with a quick trip to Houston to see our Immunologist. As hard as it is to make this trip. The love this amazing woman and doctor has for my children is incredible. She has fought as hard as anyone (other than me) to keep Alex alive through the years. She has stood in the PICU with me, cried with me, answered calls at all times of the day and night, and even met Alex when he was life flighted without me.

The week closed out with horses and our Sweetheart Dance.

These days are so precious. I love watching these two overcome so much to show the world how amazing life can be when you choose joy. Thank you to all of you who love us well.

Ali

BEST TRIP EVER!!!!

I am not sure I can put into words how amazing our trip was. The kids felt good. Everyone enjoyed the rides and there was so much joy and laughter. We had six days that were nearly perfect. The kids are already asking when we can go back. We are so grateful for the opportunity to create memories and enjoy time together as a family.

Day 1: Travel/Animal Kingdom

In the airport

Arriving at our resort

On the safari

Ready to tackle Expedition Everest

Triceratops Spin

   

Tree of life

Day 2: Hollywood Studios This day started really early as we headed to HS to try and secure a boarding group to ride the new Star Wars Ride!

Starting our day

Alex's first time on a launched coaster!

My diva

At Beauty and the Beast

Hollywood and Vine

Pretty Girls

   

Toy Story Land was awesome

Maddy was really scared, but was brave and rode Slinky Dog Dash

We ended the night with Fantasmic. We had VIP seating and it was incredible...although Zoey did NOT agree!

Day 3: Magic Kingdom

Right after Pirates of the Caribbean

Getting ready to Ride the Carousel

Selfies on Dumbo

Haunted Mansion

Pirates of the Caribbean (Do you see Zoey?)

Big Thunder Mountain Railroad

Tuesday night when we left magic Kingdom we got to meet up with Mimi and PopPop, who flew in to spend a few days with us!

Day 4: Animal Kingdom Take 2

Anyone who knows Alex, knows he LOVES Stitch! This breakfast was his special treat. 

O'hana Breakfast

Posing with Pluto

Always Mimi's Boy

The boys getting ready to ride Expedition Everest

  

Expedition Everest

Day 5: Magic Kingdom

Mimi loves Country Bear Jamboree

She can find a horse anywhere!

It's a Small World

Castle at Night

 

Last Day: Epcot/Hollywood Studios

We loved travelling by Skyliner!

Maddy's turn for a special Breakfast

Hearts for Maddy

 

I hope you can see the joy in these pictures. Both kids made big strides in their bravery and ride choices. Zoey was amazing and rode a good chunk of rides with us! We are so grateful for the kids good health and for all the people who had some part in making this trip special for us.  Especially, Mimi and PopPop for spending a few days with us!

Ali