Just a quick update to let you know of a change!

We have stopped the erythomycin. That was the new motility medication which we knew could effect the mitochondri​a. Alex's labs were HORRIBLE this morning and one of the things that jumped out at us was his lactic acid. (Kids with mito are prone to lactic acidosis, so this is a lab that lets us know if metabolical​ly he is doing well). His Lactic acid was 2.9 up from .9 yesterday. We all assumed it was a lab error. We repeated it and it was 2.6. The high end of normal is 1.8. Dr. Koenig immediately made the call to stop the erythromyci​n. Other then that things are fine. We are scheduled for early Monday morning.

Ali