Alex and Maddy

Alex and Maddy

Saturday, August 21, 2021

An Amazing Week- NSBA World Show 2021

 What an amazing week this has been! 

Oh how very different my two children are. From a very early age, Alex has had a self assurance and confidence that comes so naturally to him. He can speak to anyone from young children, to CEO's to Congressmen. He is comfortable in his own skin. He is unashamed of his "attachments" and will speak candidly about his medical problems. He is outgoing and friendly and fearless. For Maddy, on the other hand, confidence is hard to come by. She avoids speaking to people she doesn't know well, she doubts her abilities, she is "nervous" more often than not. She would prefer that I speak for her and needs extra hugs and reassurance before most things. 

Maddy's fears almost stole what she loves most in this world. Late last year she had several instances on a horse that caused her to doubt and almost stole her joy in riding. Desperate for her to find her love of riding again, I asked her Therapeutic riding Coach to do a private lesson each week where they could try and move at Maddy's pace. Starting in January, I watched as week after week Tammi poured into Maddy. I watched trust grow between them and with Hunter (a gentle giant as Tammi calls him) as their chosen horse, I watched my girl come alive. From that first lesson, Tammi and Maddy and Hunter have been a team (with Jan as their volunteer to lead Maddy when needed). I have watched Tammi nurture, assure and push when necessary. I have watched their love grow. I have seen them laugh and cry and work hard. I have watched my sweet girl push through, fear, through pain, through not feeling well with a grit and determination that is hidden beneath that shy demeanor. When Tammi first asked us to attend the NSBA World Show, my first question was whether she was ready...not physically, but emotionally. Tammi assured me she was. This week I watched my little firecracker ride beautifully. She conquered every fear and entered an arena filled with people and have the spotlight on her (her worst fear). I watched as she cried tears of pride when she placed in her first world show. I watched as she cheered on every one of her teammates. I watched her soak up the joy and love from the volunteers and staff who have loved on this child week after week. To say this week was amazing is an understatement!

Allison (Managing Director at VTC) has been there to cheer her on every step of the way

Becky is convincing Maddy it is okay to talk to people

This girl is beautiful inside and out

Sarah, one of Maddy's favorite people at VTC (and her makeup artist)

One of Maddy's favorite volunteers


Ready to Show





Ready to Go

Western Pleasure


Accepting her Medal

Tears of Pride when she got to Tammi





Western Trail









Jan, Maddy's leader since the beginning



These medals are so much more than awards...they are the representation of a little girl who has overcome so much because of the love of the staff and volunteers at Victory Therapy Center. I will be forever grateful!

Ali

Sunday, August 8, 2021

Short Update

 I will keep this update shorted than usual because my computer is not working and in need of repair. Typing a blog update on an iPad is less than ideal! And sometimes adding pictures is even trickier.

This last several weeks had been insanely busy, Filled with mostly fun! Alex just completed his fifth year participating in Summer Theater Workshop. He always enjoys himself and that was no different this year. The kids form incredible bonds and the church goes out of their way to ensure Alex can participate even when he needs to miss rehearsals. 




Maddy has continued with her crazy horseback riding schedule and swim lessons as well as finishing the summer workbook she was assigned. She is getting really excited to attend Trinity Prep in a few weeks. But first her Horse Show. She has been hard at work preparing. 





We were able to celebrate Mimi’s 70th birthday and shower her with extra love for a day. WE had tons planned, but quickly realized we bit off more than we could chew so we took a rain check on some of the fun!


For the first time in a long time, I made a little time for myself this week as well. I had lunch with two friend this week. One is the director of Hopekids for our area and we met and chatted and planned for our upcoming big trip to Montana! And the other was a friend I have known virtually for many years, but never met in person until now. We chatted for 3 hours! It is so nice to connect with another mom who shares similar challenges. Maddy moo and I both also got haircuts!


We have had a few doctors appointments…Pulmonology and Endocrine for Alex and ophthalmology for Maddy. Foe Alex everything is status quo which I will gladly take. Maddy has been having multiple severe headaches every day for weeks. We wanted to check her eyes again( Her last appointment was only 6 months again) before starting to do more testing. The doctor did find she needed glasses, but her is not sure the prescription is enough to be causing her headaches so we will see once we get her glasses. As a side note…shopping for glasses with a stubborn, opinionated fashion conscious 7 year old is not for the faint of heart. I tried picking out some super cute glasses for her as was told repeatedly, “that’s really not my fashion mom!” 

I do have a few prayer requests for this week…For all of us to stay healthy as we have our two trips in the next few weeks. For the oncologist to not feel it is necessary for Bruce to do more treatment at this point, for Maddy’s headaches to subside with her glasses and for me to find some rest in this crazy, busy time. Oh and for my computer to be fixed and not be too expensive! There is a lot of planning and organization that goes into running my house and keeping the kids healthy and not having a functioning computer is not easy!

Thank you for your love and prayers.

Ali