Alex and Maddy
Monday, December 9, 2013
Thursday, December 5, 2013
Update on both kiddos
First our official birth announcement for Maddy!
These beautiful photos were taken by Heather at Heather Parker Photography. She was awesome to work with and got soe beautiful pictures. I will post a fe more at the end of this blog.
Now for an update on my best boy...As most of you know he spiked a fever of 104.9 on Sunday and wound up being airlifted from Cook Children's ER to Houston. His doctors were pretty concerned when he arrived in Houston as he did not look well. Our initial thoughts were that he had either sepsis from a line infection or pancreatitis. Luckily, he made a fairly quick turn around and has parainfluenza. He is still not feeling great. His temp was back up to 101 yesterday and he has a pretty nasty cough that started last night. We are watching him closely. We are sp grateful for the long stretch we have had without needing to be hospitalised. We are praying this is just a small bump in the road and that we will have another long stretch infection free!
We are also trying to once again get him nutritionally sound. After several months of him looking and feeling great he has declined over the past few months. He has not gained any weight since last February and he is once again deficient in several vitamins/minerals. Unfortunately, the special prescription vitamins that he was on that he actually absorbs have been backordered. We are working hard with our Gi to find an alternative and get him feeling great again!
While we were at the pediatrician following up on Alex today, we weighed Maddy. She has gained a full pound in the past 2 weeks. She is now 7 lb 14 oz! Woohoo! We are continuing to struggle with reflux and both our pediatrician and allergist are pretty sure she is reacting to something I am eating so I am having to change my diet in order to keep her as healthy as possible.
Alex is gearing up for his next belt testing in Taekwondo. We are continuing to enjoy our break from school while we relish this time to enjoy our new baby. We will restart right after Christmas. Grandpa was hear visiting for Thanksgiving and we are excited for Mimi and PopPop to come for Christmas so it is pretty busy around here!
Here are some more pictures from the past 2 weeks as well as some from Maddy's photo shoot:
Thank you to everyone who has prayed for us over the past few weeks.
Love,
Ali
These beautiful photos were taken by Heather at Heather Parker Photography. She was awesome to work with and got soe beautiful pictures. I will post a fe more at the end of this blog.
Now for an update on my best boy...As most of you know he spiked a fever of 104.9 on Sunday and wound up being airlifted from Cook Children's ER to Houston. His doctors were pretty concerned when he arrived in Houston as he did not look well. Our initial thoughts were that he had either sepsis from a line infection or pancreatitis. Luckily, he made a fairly quick turn around and has parainfluenza. He is still not feeling great. His temp was back up to 101 yesterday and he has a pretty nasty cough that started last night. We are watching him closely. We are sp grateful for the long stretch we have had without needing to be hospitalised. We are praying this is just a small bump in the road and that we will have another long stretch infection free!
We are also trying to once again get him nutritionally sound. After several months of him looking and feeling great he has declined over the past few months. He has not gained any weight since last February and he is once again deficient in several vitamins/minerals. Unfortunately, the special prescription vitamins that he was on that he actually absorbs have been backordered. We are working hard with our Gi to find an alternative and get him feeling great again!
While we were at the pediatrician following up on Alex today, we weighed Maddy. She has gained a full pound in the past 2 weeks. She is now 7 lb 14 oz! Woohoo! We are continuing to struggle with reflux and both our pediatrician and allergist are pretty sure she is reacting to something I am eating so I am having to change my diet in order to keep her as healthy as possible.
Alex is gearing up for his next belt testing in Taekwondo. We are continuing to enjoy our break from school while we relish this time to enjoy our new baby. We will restart right after Christmas. Grandpa was hear visiting for Thanksgiving and we are excited for Mimi and PopPop to come for Christmas so it is pretty busy around here!
Here are some more pictures from the past 2 weeks as well as some from Maddy's photo shoot:
Thank you to everyone who has prayed for us over the past few weeks.
Love,
Ali
Saturday, November 23, 2013
Three Weeks
Three weeks! Crazy. In so many ways it seems like Maddy has been with us forever. I am finding my feet and figuring out how to care for all of Alex's medical needs and take care of Maddy and play with my boy and still find time to eat and sleep! It will be interesting when I add school back in for sure! Luckily, Maddy continues to be such a good baby. We are loving watching her little personality develop. She is staying awake for longer each day and loves music and especially her brother. She is such a content little girl. She rarely cries unless she is hungry or her reflux is hurting her little belly. We are all so in love with our "smooshie" as we've taken to calling her. She loves to be held, but also likes to play on her floor mat or in her bouncy seat. Alex continues to be incredible. I am not quite sure how I would manage if he wasn't such a huge help. He is always willing to get me what I need, watch his little sister and help me in the mad dash to get out the door on time! He has not complained at all about being asked to step up. He cannot get enough of his sister. He is forever kissing her.
In medical news, We had to head to Cook's twice this week. Alex is struggling a little bit with his nutrition and therefore his energy. The special vitamins that were prescribed to Alex last January and that made a big difference have been backordered for months. We believe this is the main thing behind the decline we have seen. As we wait for those vitamins to become available again we are going to add more calories to his TPN in an attempt to get some weight on those skinny little bones!
As for Maddy, we had to go back to Dr. Benzick on Monday for a weight check since she hadn't regained her birth weight at 2 weeks. On Monday, she had gained a few ounces to 6 lb 9 oz, but still wasn't back to birth weight. We started reflux meds and changed the way I was nursing to try and increase weight gain. We had to head back yesterday. We needed a minimum of 4 oz of weight gain for Dr. B to feel okay with where we were. I have been worried all week about her weight gain. She is still so tiny! On Thursday morning, I decided to release my worry and just turn it over to God. I was already doing all I could! My prayers were answered and she had gained exactly 4 oz! So my little peanut is up to 6 lb 13 oz. Dr. Benzick is willing to let me monitor at home and call if I have concerns, but we don't have to go back next week! Yay!
Thanks for checking in!
Ali
In medical news, We had to head to Cook's twice this week. Alex is struggling a little bit with his nutrition and therefore his energy. The special vitamins that were prescribed to Alex last January and that made a big difference have been backordered for months. We believe this is the main thing behind the decline we have seen. As we wait for those vitamins to become available again we are going to add more calories to his TPN in an attempt to get some weight on those skinny little bones!
As for Maddy, we had to go back to Dr. Benzick on Monday for a weight check since she hadn't regained her birth weight at 2 weeks. On Monday, she had gained a few ounces to 6 lb 9 oz, but still wasn't back to birth weight. We started reflux meds and changed the way I was nursing to try and increase weight gain. We had to head back yesterday. We needed a minimum of 4 oz of weight gain for Dr. B to feel okay with where we were. I have been worried all week about her weight gain. She is still so tiny! On Thursday morning, I decided to release my worry and just turn it over to God. I was already doing all I could! My prayers were answered and she had gained exactly 4 oz! So my little peanut is up to 6 lb 13 oz. Dr. Benzick is willing to let me monitor at home and call if I have concerns, but we don't have to go back next week! Yay!
Thanks for checking in!
Ali
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