No News Is Good News

I really don't have much to say! Do you know what a blessing that is????

We have had a good, quiet few days! The usual....therapy, school, naps, etc. School is going well. We only have a few more weeks and we will take a break until we gear up again in late August. I have my curriculum picked out and am just waiting to scrounge up the funds to buy it. Alex is excited once again about what we have decided to study.

Alex had a haircut with Daddy today. He always looks so cute when his hair is freshly cut. And at least we are well past the point where he cries and screams every time he has to go!



We are loving our new nurse! She is so kind and really calm with Alex. I am working to get her up to speed on all our meds, interventions and the many little things it takes each day to keep Buggy going.



I have managed to escape twice this week for some girl time and leave Robin and Bruce to man the fort! I had lunch with a good friend on Tuesday and then had dinner with all my girlfriends from MOMS club last night. It is always so nice to get dressed, do my hair and feel half normal!Thanks for all of you being there to give me a much needed break. It was good for my soul!

The ramp up begins AGAIN! Grandpa is flying in on Tuesday. Which is also Buggy's 6th birthday! Can you believe my baby is going to be six?????We can't wait to see Gramps again. We keep telling him if he is going to come 6 times a year he should just move here!

I think that is all! Prayers as always that Bug stays healthy and that Brucey's perfect job is right around the corner!

Ali

The joy of Summer

This is the way it should be...








Every little boy should be able to run through the hose in the backyard. Too often Alex can't because his port cannot get wet. So once a week when he gets deaccessed we make the most of it. And the result is pure joy!

Alex is struggling to increase feeds as quickly as we would like, but as we always say slow and steady wins the race. So we continue to truck along at our snails pace.

We had a fun weekend. Daddy was playing in a soccer tournament. Alex loves to go out and be "one of the guys". Bruce's soccer team is like family to Alex. He has been a part of the team since he was a newborn. he has grown up with these guys. These days it is so much fun to watch him "warmup" with the guys. They are so tolerant of him stretching and kicking the ball with them. I wish I had had my camera with me because it really is cute. The boys were happy to win the tournament and take home the championship!

We ran labs today. Unfortunately all the results did not get back to me so I will have to wait till tomorrow to see how they look.

Our last bit of good news is that a new nurse started with us. So far we all seem to like her. We are hoping she is the perfect fit for our family!

Ali

Oh So Hot!

But what a fun day we had!











Ali