Prayers Needed

I sit tonight on the edge of my seat. Our bags are packed. And we watch Bug trying to decide whether or not to go to Houston. His temp which started this afternoon around 2:00 at 101.5 has been at 102.6 for a while. I have talked to Dr. Koenig and she has left the ball in my court. Earlier we felt that this could be a metabolic fever brought on by us increasing his feeds. However, as the temperature creeps up that seems less likely. And so we wait and check temps. We desperately want to stay home BUT we also want to keep Buggy safe.

Please pray that I make the right decision. Please pray for Buggy to feel better. Please pray for Bruce to get a job SOON.

Ali

UPDATE....Leaving for Houston. Temp 103. Will update in the morning.

Birthday Party times 2

Yesterday, was a whirlwind! Two of our close friends from playgroup both had birthday parties! It was fun day with lots of much needed time with our friends. I say it all the time, but Alex and I really miss our playgroup when we are away. Brookie's party was a hollywood theme so Bug wanted to be a director. He looked really cute.



Alex is doing really well! Yesterday was a big day as we were able to get his feeds up to 20 cc/hr. That was the magic rate where we could attempt to stop TPN during the day and just run it at night. He gave us a scare at first as it didn't look like his blood sugars would hold. Luckily, his body adjusted and we were able to go back to our small (much more manageable) backpack during the day!

Tomorrow is lab day. I am also hoping to speak to a Dr. K about a couple of outstanding test results. I will update after I know more.

Ali

New Blog with LOTS of Pictures!

While I have loved the ease of our caringbridge website, I have missed being able to share pictures of my Buggy enjoying life! I have tons of good pictures and feel limited on cb by the size and quantity of allowed pictures. So I am making a move! I will continue to use caringbridge as a way to let you know I have updated, but this will be my primary site.

We were SO sad to say goodbye to Mimi this morning. It is always a tearful time at the airport. We wish so badly we could be closer. Mom- Alex and I love you with all our hearts. Thank you for taking a few days to come see us. We will be counting down the days until July!

Hope you enjoy the pictures on this new page!
Ali

PS- I will be copying over my posts from CB so that they will all be archived here.