Our quiet boring few days and weeks took a turn this morning....​

I got a call from the hospital letting me know that Alex was scheduled for a test with anesthesia on Monday. WHAT???? So after some digging around the scheduler figured out that all the testing we have been meaning to do on Alex- 5 procedures are scheduled. This is somewhat of a blessing. We have been putting off some of this testing for 18 months. So we will head to Houston this weekend once again! Alex will have an MRI of his brain, an MRI of his entire Spine, a lumbar puncture, an SSEP, and a hearing test. The brain MRI and hearing test are routine mito tests that have to be repeated periodicall​y. The lumbar puncture is to rule out a neurotransm​itter disorder we just found out Mimi has and could be adding to Alex's symptoms. The spine MRI and SSEP are to try and get to the bottom of Alex's syrinx (fluid in his spinal cord) and make sure it is not getting worse. So poor Buggy will be put through the ringer. We will spend a couple nights inpatient to get Bug back on his feet and then we will come home.
Luckil​y the Knights are once again going to let us invade their space. We planned to go down on Sunday, but Missy convinced me to come down Saturday and give the kids more time together.
Bruce has second interviews with 2 companies the next 2 days. Tomorrow is for a position he would love here in the DFW area. Friday's interview is in Houston with a small company. Please pray for him to get an offer from one of these two companies.

I will have my computer with me this trip so I will update from the hospital.

Al​i

Sorry for the lack of updates. Not much going on around here!

Alex is hanging in there. He is still fighting this sinus infection. Despite being on his 3rd week of antibiotics he is still having a runny/stuff​y nose and fluid in his ears. he is also feeling dizzy/shaky numerous times a day. I have not heard back from the doctors yet on what the next step is. Alex is also having a hard time with his blood sugars right now. Within a few minutes of being unhooked from his tube his sugars are dropping into the 60's. I am not sure what is causing that, but think it must be related to the sinus infection. The other problem we are having is that my sweet Buggy is a bear right now. My best guess is that between the antibiotic and the sinus infection he isn't feeling well and he is having numerous tantrums and meltdowns a day. Not at all like him. Please pray for Buggy to feel better and for my patience.

We are still hoping and praying for Bruce to get a good job! He has received more calls recently so we are hopeful that something will come along soon.

Thank you for all your love and support.
Ali

This has been a pretty quiet week around here. Alex is doing well. He does not seem to be clearing his sinus infection. I am waiting to hear back from the immunologis​t on if we need to try something different. Otherwise he is doing pretty good.

Over the weekend, we flipflopped Alex's room and the guest room. Alex has more space now. He is enjoying his new room. He has settled in without a problem. Now, we just need to paint it.

Bruce and I are having a harder week. The stress level is pretty high as we are at rock bottom financially. We are scared and stressed. The air is palapable in our house as we try and figure out what to do. The problem is there are no answers. Bruce conti​nues to send out huge amounts of resumes. He has had a few interviews. We are trying to remain hopeful that the right job is just around the corner. We ask that you all continue to pray for us.

Thanks for loving us and sharing in our lives.
Ali