Alex and Maddy
Thursday, November 5, 2009
Monday, November 2, 2009
This will be quick because I am exhausted!
The plan is to be discharged tomorrow. We need to get another Vitamin K infusion and see hematology before that can happen. Today went pretty well. The only set back was a couple of nosebleeds. We are not sure why he had nosebleeds today as his clotting numbers look the best they have looked since he got sick.
We got our blood transfusion today. Hopefully that will hold us a good long time again! We were ecstatic to have made it 7 months since our last transfusion!
I will let you know when discharge plans are final.
Ali
The plan is to be discharged tomorrow. We need to get another Vitamin K infusion and see hematology before that can happen. Today went pretty well. The only set back was a couple of nosebleeds. We are not sure why he had nosebleeds today as his clotting numbers look the best they have looked since he got sick.
We got our blood transfusion today. Hopefully that will hold us a good long time again! We were ecstatic to have made it 7 months since our last transfusion!
I will let you know when discharge plans are final.
Ali
Sunday, November 1, 2009
Things continue to improve in Houston!
Alex has been fever free for over 36 hours. Because we never found a source of infection and don't know whether it is bacterial or viral, we are stopping antibiotics. They will keep us here for a few days to make sure he doesn't reflare. SO hopefully, he will stay well. He is still not walking, but is not quite as shaky when standing.
His labs look better. His clotting numbers are normalizing now that the Vitamin K is kicking in. We are supposed to see Hematology tomorrow to discuss our increased need to supplement his vitamin K to keep him clotting. We will also transfuse tomorrow as far as I know. The plan is to watch us tomorrow and have us see some specialists and then discharge us Tuesday or Wednesday.
Thanks for keeping us in your prayers.
Ali
Alex has been fever free for over 36 hours. Because we never found a source of infection and don't know whether it is bacterial or viral, we are stopping antibiotics. They will keep us here for a few days to make sure he doesn't reflare. SO hopefully, he will stay well. He is still not walking, but is not quite as shaky when standing.
His labs look better. His clotting numbers are normalizing now that the Vitamin K is kicking in. We are supposed to see Hematology tomorrow to discuss our increased need to supplement his vitamin K to keep him clotting. We will also transfuse tomorrow as far as I know. The plan is to watch us tomorrow and have us see some specialists and then discharge us Tuesday or Wednesday.
Thanks for keeping us in your prayers.
Ali
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