My sweet angel was so good all day yesterday. All of your thoughts and prayers must have worked yesterday!

A​lex had a gastric emptying scan yesterday. Basically a test to see how fast his stomach can empty. His belly should empty fluids in about a half hour. After 90 minutes, Alex's stomach had only emptied 3% of his 4 oz of formula. This explains why we have so much stomach pain and why we can't increase our feed rate.

The plan is to put in a different tube that bypasses his stomach and goes directly into his small intestine. We are not sure if this will fix the problem, because we don't know if his motility is any better farther down the GI tract, but it doesn't hurt to try.

We will be here at least into next week.

Love you,

Ali

Feeling a lot better although still exhausted! My sweet angel is back and his evil twin has left the building. Coincidentl​y it happened when we backed down on his feeds and then stopped them all together. We think he isn't verbalizing when he is in pain. The question becomes what to do about the feeds. I will update again once we see Dr. Koenig and have a plan, but I did wan to let you know that things are looking up. All the prayers are working...K​eep them coming.

Ali

Wow it has been a rough few days. I am asking for everyone to please pray for both of us. I am at my breaking point. I am not sure what is wrong, but Alex is not himself. We are not sure if it is medical, behavorial, frustration​, pain, lack of sleep or all of the above but he is just not right. I have seen glimpses of my sweet angel the last few days, but I have seen more moments of a child I do not know and it has not been fun. Alex will can not sleep, he is hitting, kicking, throwing, yelling and he physically attacked me and sratched my neck down both sides yesterday. We are almost positive their is a medical cause behind this beciase it is so out of character, but it is so hard. I have just had to walk away numerous times. Thank goodness Jen is here. She has calmed his down numerous times. It has boiled down to pain a few times and a fever after the bad incident, but we don't what the "main" cause is. I am just exhausted and have knots in my stomach. I am so anxious for Dr. Koenig to get here this morning.

Ple​ase pray for me to have patience and kind loving words for Alex and for him to be able to tell us what is worng.

Ali