We are exhausted! We have had a rough day. We had to be at the hospital at 10:00 this morning and got back to the hotel at 5:00. Alex did well during the scope/tube change. He has some visible inflammatio​n in his small intestine and some ulcerations around his tube. Dr. Putnam ran a "ton of bloodwork" and took quite a few biopsies. Alex is having more pain then he has ever had after a scope. We aren't sure if it is from the tube change or the biopsies, but he isn't a real happy camper tonight. We are stuck here (again). Dr. Putnam wants us to stay around until the results come back. We have an appt with him on Tuedsay Morning. At that point he will decide what else he wants to do. He mentioned the muscle biopsy and some motility testing. The good news is Grandpa is coming out Sunday to keep us company. The bad news is Bruce will be spending Thanksgivin​g/his birthday alone for the second year in a row. We are having fun with our friends and looking forward to seeing Grandpa.

Ple​ase keep us in your prayers.

Ali

We are packed and ready to go! Alex is excited to get his button and see his friends. I am not taking the laptop this trip, but I will update at least friday night. Please pray for our safe travel and Alex's surgery to go well.

Ali

We just got back from seeing Dr. Benzick. He does not feel like this is a stomach virus, which is how I have felt all along. We are not really sure what triggered it, but we think it is related to his EGE. He has lost a couple of pounds which is never good news. He is tolerating half strength formula. So we will wait to see what they have to say in Cincinnati. We are still waiting for some of the bloodwork to come back from the hospital. I'll update if anything changes.