Hi Everyone!

As most of you know we spent last week in Disney World. We had such an incredible time. Alex loved the characters adn rode all the rides and saw many shows. As he told us many times, his favorite ride was the monorail!!! He loved the dumbo ride, the jungle cruise, the safari, the train. Pretty much all of it. He keeps telling everyone that he was brave because he went in the haunted mansion. Overall, it was just a really fun time. He loved being with Grandpa, Mimi, PopPop, Aunt Jenn Jenn, Uncle Jimmy and Skye Skye. So thanks Grandpa for the best vacation we've had in a while. It sure beats Cincinnati!​
We got home Sunday and Alex and I both have colds. Alex has a fever, but seems okay otherwise. We had a great therapy evaluation on Monday. Alex's fine motor skills and strength have made huge improvement​s since his feeding tube. He still has some stuff he needs to work on. Mostly continuing to improve his overall strength, his confidence in gross motor skills and most importantly his hand strength. His hand strength is still pretty far behind, but hopefully that will improve once we are working on it. Alex was so happy to see Miss Elizabeth. He loves therapy. He has already asked me a few times when he can go back. We are only going to go once a month, because we have seen so much improvement.

Alex had his weight check yesterday. He still hasn't gotten any taller so we are keeping our fingers crossed. He also lost eight tenths of a lb in the last month, but we are hoping his weight gain will pick up again. We won't have an official weight check until we get up to Cincinnati in November. At that point we'll let them decide what they want to do. They will also determine at that point whether they want to do the muscle biopsy and also whether we can start to trial foods again.

We are excited for our trip to Cincinnati. We are flying out with our good friends Tricia and Andrew. Andrew has the same disorder as Alex and has an appt the same day. We will also meet up with our friends Janette and Monty out there.

Overa​ll, things continue to go well. As soon as I have our pictures back I will upload a few.

Ali

Alex is still fighting the cold/reacti​on that started last week. We think it is a cold, but we aren't really sure. We leave tomorrow to head to Galveston, TX to spend the week.

I have uploaded some links into the "links" section. There are two videos: one is a video montage I made of Alex. The other is a video about eosinophili​c disorders. The other links are pages that explain about EE or food allergies.

L​ove,

Ali

I am not sure whether to consider this good or bad...

We have decided that Alex was not sick this weekend, but was reacting to something. On Saturday we went to a neighborhoo​d cookout. There was a popcorn maker with a bunch of kids eating popcorn and Bruce let Alex have a bite of cotton candy. Sunday morning Alex started telling me he didn't feel well. I didn't think anything of it. All day Sunday he complained of not feeling well, but he was still acting okay. Monday he came down with the fever. It never got above 101. He also had a lot of congestion and clear runny nose. Today he had diarhea and a red diaper rash. All of the above are signs of a reaction. When he is sick his fever is ALWAYS above 103.5. So while we are glad he isn't sick it is always dishearteni​ng to have another reaction.

Ju​st wanted to update everyone.

Lo​ve,

Ali

PS-The fever has been gone since this morning!