I need to start with a huge THANK YOU to my Busy Moms Bible Study ( and Gail and Lisa)who have kept us fed since my surgery! Since standing for any length of time is difficult it was so helpful to not have to worry about cooking. Thank you to my prayer partners for keeping me in good spirits and not letting me get in a rut. And to Mimi and PopPop for driving Mad around when Bruce couldn't get away from work. This has definitely been a trying few weeks for me as I am fiercely independent! Not being able to get where I want when I want has been a challenge for sure.
As for my recovery...I am improving, but it is slower than I would like. The good news is that I am getting around a little more. I am pretty sore by the end of the day, but it is manageable. I am still trying not to overdue it. I go back to the surgeon on May 11th and we will discuss therapy at that point.
As for the kids there have been some ups and downs. Alex had an appointment with his nephrologist and had some labs that have continued to get worse so we are adjusting one of his meds. He is also having some significant colitis that is not uncommon when you have your colon removed. We are keeping a close eye on him. Maddy had a follow-up with her neurologist and while we have had some improvement, she continues to have migraines several times a week. We are doubling a medication to try and get better results. She is also having more trouble with her knees lately, but there isn't much we can do to help that. The most concerning at this point is she has lost a pretty considerable amount of weight. And with that she is losing strength which is hard because she is weak at baseline. It is making riding hard for her. It breaks my heart because she works SO hard, but when you don't have strength it is hard to make a 1500 pound animal do what you want! We are currently increasing her formula to try and get her going the right direction.
I don't have a lot of pictures because I have been mostly stuck home or sitting in a chair which is not a great way to get pictures! However, we did a few fun events. Last Saturday we attended the Victory Shootout and on Tuesday my bible study painted a Turquoise Table for Victory. (If you haven't read The Turquoise Table, you should!)
 |
| Alex shooting Clays |
 |
| Maddy and Nichole (the creator of the Moo Crew) |
 |
| Tammi with her girls, Mad and Emerson |
 |
| Cruising in the Golf Cart |
 |
| Tammi has made such a difference in Mad's life and I am so grateful for her! |
 |
| Our completed Turquoise Table |
 |
| Meeting Freddie! |
I am so grateful to everyone who has helped us with support and prayers. Please pray for the kids health and my continued recovery.
No comments:
Post a Comment
Note: Only a member of this blog may post a comment.